Effective Date: 03/04/2025
Last Updated: 03/04/2025
Love Live ALS Foundation (“we,” “us,” or “our”) is committed to protecting your privacy. This Privacy Policy explains how we collect, use, share, and protect your personal information when you use our website, community platform, and services.
By using our website and services, you consent to the data practices described in this Privacy Policy.
1. Information We Collect
We collect different types of information to improve our services and enhance user interactions.
1.1 Personal Information You Provide
When you register or interact with our website, we may collect:
- Name, Email, and Contact Information
- Profile Details (e.g., bio, location, profile picture)
- Community Contributions (e.g., posts, messages, comments, forum discussions)
- Donations or Payments (if applicable, processed through secure third-party payment providers)
- Preferences and Interests (e.g., groups you join, topics you engage with)
1.2 Automatically Collected Information
We may collect certain information automatically, including:
- Device & Browser Information (IP address, browser type, operating system)
- Usage Data (pages visited, time spent, interaction with features)
- Cookies & Tracking Technologies (to enhance user experience and analytics)
1.3 Information from Third-Party Integrations
If you register or sign in using Google, Facebook, or other social logins, we may collect information from those services according to their privacy policies.
2. Medical Information Disclaimer
Our platform is designed to provide community support, information sharing, and peer interactions related to ALS. However, we do not provide medical advice, diagnosis, or treatment.
If you choose to share personal medical information (such as your ALS diagnosis, treatments, symptoms, or medical history) within community forums, groups, or discussions, you do so at your own risk.
- We are not responsible for how others may use, share, or interpret any personal medical information you disclose publicly.
- Always consult a qualified healthcare professional before making any medical decisions based on discussions within our community.
- Never disregard professional medical advice because of something you read on this platform.
By using this platform, you acknowledge and agree that we are not liable for any consequences resulting from your decision to share medical-related information.
3. How We Use Your Information
We use collected information for:
- Community Engagement: Enabling user interactions, groups, and discussions
- Personalization: Tailoring content, suggestions, and resources based on interests
- Security & Fraud Prevention: Monitoring for misuse or harmful activities
- Communication: Sending important updates, newsletters, or responding to inquiries
- Service Improvement: Analyzing site performance and optimizing features
4. How We Share Your Information
We do not sell or rent your personal data. However, we may share data in the following cases:
- With Other Community Members: Profile details (excluding email) are visible to other registered users. You can adjust visibility settings in your profile.
- With Trusted Partners & Nonprofits: We may collaborate with ALS organizations, research groups, and volunteers to enhance support services.
- With Service Providers: We use third-party providers (e.g., hosting services, analytics, email communication tools) that are contractually bound to protect your data.
- Legal Compliance & Protection: If required by law or to protect user safety, we may disclose information to authorities.
5. MailChimp & Email Communication
We use MailChimp (or a similar email marketing platform) to send newsletters, updates, and community notifications.
- When you subscribe to our emails, your email address and preferences are stored securely by MailChimp.
- You can unsubscribe at any time using the link at the bottom of any email.
- MailChimp may collect analytics data, such as whether an email was opened or a link was clicked, to improve our communications.
For more details on MailChimp’s privacy practices, please visit their Privacy Policy.
6. Stripe & Payment Processing
If you make a donation, purchase merchandise, or pay for services on our platform, payments are securely processed through Stripe (or another payment processor).
- We do not store your credit card details. Stripe securely handles all payment transactions.
- Your billing information is used solely for processing payments and fraud prevention.
- Stripe may collect and store transaction-related data according to their own Privacy Policy.
7. Cookies & Tracking Technologies
We use cookies and similar technologies to:
- Remember login sessions
- Improve website performance
- Track analytics (via Google Analytics or other tools)
You can manage or disable cookies via your browser settings.
8. Data Retention & Security
- We retain user data for as long as necessary to provide services, comply with legal obligations, or resolve disputes.
- We implement encryption, firewalls, and secure access controls to protect your information.
9. Your Privacy Rights
Depending on your location, you may have the right to:
- Access, correct, or delete your personal data
- Opt out of marketing emails (unsubscribe link included in emails)
- Restrict or object to data processing
- Request a copy of your data
To exercise these rights, contact us on our contact page.
10. Children’s Privacy
Our platform is intended for users 18 and older. We do not knowingly collect information from children under 13.
11. External Links & Third-Party Services
Our website may link to third-party websites or resources (e.g., ALS organizations, fundraising pages). We are not responsible for their privacy practices.
12. Changes to This Policy
We may update this Privacy Policy periodically. Any changes will be posted with an updated “Effective Date” at the top.
13. Contact Us
If you have questions please contact us on our Contact Page.